The U.S. is far behind Europe in diagnosing and treating these conditions, but raising awareness can help those who may have it and not know it. I'm doing my part. Lipedema often runs in families and is thought to have a possible genetic connection. Hormones are also involved, since only a handful of males have EVER been diagnosed with it.
In severe cases, you lose mobility or, sometimes, have your leg(s) amputated. Thankfully, I was diagnosed and began MLD (Manual Lymph Drainage) therapy and started wearing compression stockings. My legs, below the knees, are affected. But sometimes it spreads. I'm at Stage Two, and DO NOT want to end up at Stages 3 or 4.
Ladies, it doesn't matter how young or old you are, and it doesn't matter if you're a size 2 or a size 20+ -- you should become familiar with these diseases. The quality of your life depends on it.